Purpose
The Duchenne Family Assistance Program offers families financial assistance with expenses related to the care of a child or young adult with Duchenne Muscular Dystrophy (DMD). The program provides help and expertise to families who need access to recommended treatments and equipment, clinical care, and social services. The program removes barriers preventing families from getting what is needed to live their best quality of life. The Little Hercules Foundation helps patients and caregivers who have been denied access to treatments, clinical care, equipment, and social services. Team Joseph takes the lead on assistance that includes, but is not limited to, purchasing equipment (scooters, manual wheelchairs, shower chairs, etc.), accessible ramps, transportation to clinic visits, vehicle modifications, and home modifications.
Contact(s)
1-833-428-3301
email: info@duchennefap.org
website: duchennefap.org
Financial Criteria
No financial eligibility requirement
Eligibility
Children or young adults with Duchenne or Becker Muscular Dystrophy
AT Services Provided/Covered
None
AT Devices Provided/Covered
AT that includes, but is not limited to, purchasing equipment (scooters, manual wheelchairs, shower chairs, etc.), accessible ramps, transportation to clinic visits, vehicle modifications, and home modifications.
Application Process
To apply for this free assistance, please complete the seven sections of the online application. Once the application is completed and the authorization checkbox in section 7 is checked, applicants will see a Submit button to send in the application. Following the successful completion of the application, someone from the Duchenne Family Assistance Program will be in contact. The application must include documents related to the application: a letter of medical necessity, insurance denial, appeals, prescriptions, quotes and estimates, and a personal letter of need.
Pieces of the Puzzle
- If the parent or guardian is submitting the application, they must indicate if they have a Power of Attorney and submit a copy of the POA if they do. If they do not have a POA, the foundation will contact them to get permission to speak to them on behalf of the individual with DMD or BMD.
- Applicants must provide confirmation of a DMD or BMD diagnosis. Examples of acceptable documentation include genetic testing, IEP or 504, and a doctor appointment summary that states the diagnosis. Applicants may submit the application without documentation and someone from the foundation will follow up to collect the documents.